perfectly unsteady
sometimes the beginnings we wouldn’t have wished for
become the beginnings we wouldn’t wish away
a blog about disability
I love writing and neuroscience, and I live a fulfilling life with CP—not in spite of CP. I created this space to share stories, encouragement, and advice.
Although you’ll find some posts here about SDR surgery and other treatment options, many posts will focus on other facets of life with disability. Our lives are about so much more than the treatments we do (or do not) receive, and I want this blog to reflect that.
james and ms. brenda of the chase park plaza hotel
When my mom and I were packing for my spinal cord surgery in St. Louis, I remember asking her what she was nervous about. One of her worries, she said, was that we were flying a thousand miles across the country to a state where we had never been—to a state where we...
gracefully me (a guest post by kendra schnip)
It is an honor to introduce you to one of the most extraordinary people I know: my cousin, Kendra Schnip. Although our journeys have been quite different—she is a brain cancer survivor, and I have CP—we can relate to each other in beautiful ways, and our shared...
celebrating world CP day
Today, October 6th, is World Cerebral Palsy Day. Did you know that if you put all 17 million of us together, we'd make up almost the entire population of the Netherlands? Imagine ... what would it be like if we all just started our own country together? (We'd allow...
enough
I remember coming home from second grade and staring at my crooked legs in the mirror. I had watched my classmates on the playground that day. I stood back, quiet and still amidst their shouts and laughter, part envy and part curiosity as they effortlessly ran and...
a tribute to Dr. TS PARK
I was a thousand miles from home, in St. Louis, Missouri. As my mom and I entered our hotel's lobby, a young man in a staff uniform rushed forward to hold the door. His eyes lingered on the stiffness in my legs as I passed through. "Are you here in St. Louis to see...